My 6 week post-op ADD'esque novel based post.

One day over 6 weeks since the craniotomy.

Yesterday we were at Duke

meeting with the Family/Marriage Therapist.

It was good.

Really nice to sit down and talk with someone

non-biased.

We will see her in another two weeks.

(Our choice.)

This morning we took Logan into the Geneticist again.

So, after meeting our Genetic Counselor,

getting the run down.

signing consent,

having our Geneticist come in and talk

all the details behind the test,

Human Genome Exome.

Then back with the Couselor,

then checking out,

getting set up for the lab work

via phlebotomy.

Then waiting, watching people stare at Logan

chasing all around the waiting room,

then launching a lego car

about 6 inches from Andrew

and

watching it shatter after smashing

into Andrew's forehead.

We got called back for

our blood draw.

Andrew's turn,

mine

and

we finished with Bitty's.

Now, we wait for results in 4-6 months

as they filter through 17-20,000 genes

and

we hope to perhaps to find

some answers.

Since it seems we all fit into the

atypical pattern of issues.

Yeah...I could do an whole extra post on that kind of thing

or even type about

really our basic learning

of the need and/or hopefully help of this gene testing.

So the purpose of this post was to touch base on 6 weeks post op.

Yup..take me an entire 1 page of a word

document of typing to get to this point...

Haaaaa.

Yeah.

Can I claim tumor related ADD?

Or

like I said in a video I posted to Facebook

perhaps now it's

ADD/memory due to a hole in my brain??!

I used to be pretty on the ball on

everything

and

then it slowly started to drop.

Blame it on the Kids, stress,

all of the above.

Or

perhaps not.

So, 6 weeks and one day ago

Arnie got kicked out.

Bunk you Arnie.

Don't come back

and

if/when you do

I will stomp you again.

Yes..you suck.

I will win.

I am stubborn, hard headed

and

can be competitive and motivated.

Go Jump off a bridge Arnie!!

Yes. There is a spoonful of my feelings.

As of yesterday I feel I have made it over a

wall of challenge.

I feel like a version of myself.

I know I am not 100%

but actually

feel like I can do some things for the kids.

Last week I started wearing my contacts again.

My eyes weren't so happy.

My left eye still hurts like a foooool

to look up or roll it.

Yeah...since Arnie was putting pressure on my left optic nerve.

I hope it will lessen with time.

I figure so, since I still have some swelling in my left temple area.

My eyes will go blurry sometimes with contacts.

Not sure if I need to see the eye doctor again

or

just more time

and

sometimes they feel like I am looking through a magnifying glass.

Who knows?!

My head is actually not totally hurting

for the first time in 6 weeks too.

BOO YAH!!

Yeah..and I can lean forward with out

a ton of pressure building up in my head.

I can dry my hair after a shower

and

straighten it now

with out having to take a rest.

BOO YAH AGAIN!!

I WILL WIN FOOOOL!

Yes.

The Boys have done great

with the last little bit of me being able to do more.

Again, first goal is,

take care of my Boys.

The Kiddos and my Wonderful Husband.

The house may not be cleaned,

the laundry may be super behind,

but

the hopes of the basics.

Since my Aunt is with us

I was able to nap today

Yeah..I took a two hour nap

and

here I am tired still.

BUT not Exhausted.

Soo,
I will take that.

Once my body gets used to taking care of things here

I am back to Boot Camp Class.

I am so excited!!

Forward steps,

it may be baby steps

AND

I don't care!!

I mean come on, every bit moving forward is

AWESOME!!

I mean again...come on it's like the things

with our Bitty.

He follows a different ruler.

He takes baby steps.

I mean today at his appointment he

asked for a diaper change.

WHAT??!!

Yes, new for us!!

This is forward motion towards potty training

for

our Baby D he will probably be in a a few months

for

Bitty it could be a few months

or in a

year or more

but this is forward progress on it for him.

He is taking us there at

the pace that works for him.

If they both want to do it at the same time

AWESOME!
That would be the first time in 5 years

we could have break from buying diapers.

However, we will probably

have 1 in diapers which would be a break

for the first time in 2.5 years.

Yup and nice to your budget too!

So we shall see.

Again, so baby steps peeps!

They are good!!

It's whether you decide to see it or not.

We decide to.

So yup.

6 WEEKS FOOOOOOOLSSSS!!

Here we are.

I feel kind of like me!

YESSSSSSSSSSSS!!!

Which is great news for all

but

especially all the Boys I live with.

Who ever thought as a Mom

you would live with 4 Boys!

Heck if we had more kids they all would be Boys.

My gut says it.

I don't doubt it.

It's what was meant to be.

I am so grateful for all we have

and

all there is.

I think Andrew is there too.

Good. Just showed him what I typed

I got a nice head nod.

:)

Yes because when I type I

use my nice ear buds

with usually one silly rap song

yeah..

Lil Jon and

the East Side Boyz

and

Ying Yang Twins

Kings of Crunk

“Get Low”

…

inappropriate yes it is.

If you ever saw

Sandra Bullock's movie

“Two Weeks Notice”

and

she danced around a tribal fire

with

Betty White

and

sang her own song.

This was it.

So that is what I think of when I listen

to the not so nice lyrics..

I think of her dancing to it

and

can't wait to start running again

and

using this song as along exercise motivation.

Yup.

Two posts in one day

The other day I did pretty well.

I did a few things for maybe 20 minutes

then sat on the couch for 4 hours.

I did not want to nap

because that messes with

my ability to sleep at night.

I type and mess on the blog

and

listen to music to try

and turn my thoughts off.

And then by the end of the night

I had enough energy to help straighten up for

about 20 minutes

and then was pretty much

ready for bed by 8p.

Yeah.

So here I am in the afternoon messing

on the iPad, my phone, iPod

or laptop.

I listen to Pandora

to music that I like to workout

or

run to.

This way I can almost feel like

I am moving to the music.

I don't like to dance unless

I get a good buzz on.

I think once all is said

and

done I am going to try

and

work through that.

Why not?!

Who cares what I look like?

If someone cares that's

their problem

not mine.

I may as well enjoy it.

Right?!

On a bad day I listen to the music

and

I act silly to Andrew
and
dance to him to the music.

Why not?!

It makes him laugh.

Then again the other day

after a shower

I was dancing in our bathroom

and

turned around

and

there he was.

I about fell over

and

laughed super hard.

A lot of it is rap-like music

a lot of the songs

say bad words

which still sometimes

pop out of my mouth,

they also say to shake your butt

or

stick it out

and

I just act goofy to it.

Why not?!

It's at least a coping mechanism for me

and

typically I use exercise or running.

I will get back to that.

I SO can't wait.

In the meantime I am trying to find something

to work with.

Aidan has loved singing

and

rhythm ever since he was 16 months.

He loves all sorts of music.

Adult (heh) and kids.

He also makes a lot of his own.

Logan has just started to sing.

Every so often he dances too.

:)

He favorite song to sing lately is the

ABC's and Stacy's Mom.

HAH.

D likes to sing too.

He will dance

and

sometimes join me

for about 10 seconds before he hides.

D sings all sorts of songs too.

I love it.

It makes me smile

and

laugh.

These Boys are wonderful.

Anyways, trying to find some ways for coping

and

a little annoyed I can't do much.

I will make up for it when I get better.

Trying to have patience and listen to what God

is trying to share with us.

Keeping the Faith and Hope

and

remembering to keep

my determination

and

butt kicking

ready for all the

challenges we are coming to face.

Here's a photo collage of me.
I was being stupid..yeah I am bored. 

The bottom left photo I circled where I still have some 

swelling. 

You have to really look at it. 

My face is just a tad unbalanced still. 

It will take well over a month for it to all go down. 

but yeah...

so the bottom right photo is the same photo

without a circle on it.