Showing posts with label birthday. Show all posts
Showing posts with label birthday. Show all posts

Thursday, April 24, 2014

Bitty's Turned 5!

Bitty turned 5 this month.
As all Children are, he is truly amazing.
We are so grateful that we were given Bitty.
A blessing and a true gift as Children are.

I spent some time re-reading the posts from
my pregnancy with Bitty.

I cannot believe 5 years have
gone so quickly.
Our Little Bitty has grown so much
and
he has helped us to grow.

Grow in Faith, Love,
Learning, Patience
and so much more that I know
we have not realized yet.

Bitty's words are coming a long.
The are honest and some times brutal.
It is not easy, he uses them well
at times not always flattering though.

He is able to tell us when he is done
and
had enough.
He has told many kids to,
“Go Home! Leave!”

In a forceful tone,
we are working on being polite
but he has used his words
instead of going into
full fledged screaming fits of
frustration.
This is a big step,
now granted if they extra stimulation
does not end
then he will go into screaming mode
but
he has gained the ability to use words
before that point.

He is still full out in love with
numbers
and
letters.

His Teacher was working on numbers
with his class the other week.
They all got to come up and circle a number
on their board.
She said he asked for the number 100.
She said it took some effort but she finally stumped
him with numbers once she tried out 1000.

He still likes his lines for visual stimulation
and
signs of all kinds.

He still does some stacking and patterns through out the house.
Not as much as before and
we think it was due to the other home being so wide open.

He now only begins it after some rough bouts.

He has adjusted well to moving,
we are now 6 months into being here.

He had a delayed reaction to the move
and
doesn't like for
any seasonal decoration change to be done.

Heck, he fits if he sees me add the Boys new art work to the toy room.

That said, I do not do it when he is able to watch.
He accepts the change so much better
to see the end result instead of the work.

This Birthday is the first one that when we
asked, “What would you like?”
That he had an answer.
The first answer was, “A Dusty cake.”
He loves Disney's Planes.
I then asked if he what flavor of cake,
I had to offer two choices.
**This is a typical aspect that he
works with in Speech, ask a question,
if an answer is not generated, we offer choices. **
He answered, “A vanilla.”
So, a vanilla Dusty cake it was!
He pings our heart on a daily basis
(as all Children do)
and
he sang with us, “Happy Birthday!”
He did not try to grab the candles, he focused on them,
and without being told blew them out!
We had not been practicing at all, he blew them all out
and
then cheered for himself.
It was beautiful.
Of course, I started the video late
and stopped it early
but am pretty sure even without a
video that this moment will forever
be etched in my memory.

He was excited on his decorations.
Of course we always did this in the past
in hopes of some recognition of his day
by him.
A way to denote it was a different
than typical day.

This year we went into his room,
he did his routine, “Good Morning.” response
and
we told him it was his Birthday.

He perked up and ran downstairs
as fast as he could,
went straight to his chair
and
started “Oo-ing and ah-ing” over
a birthday hat, and decorations.
It was a wonderful change.

He had also requested for weeks,
a red present.
So, yes we obliged and made sure
we had red wrapping paper.

One lesson we learned with our new found
potty trained Bitty, that he truly needed to go
potty before we said, “Happy Birthday!”
Needless to say, I realized he had not gone
and
we were not able to break his focus.
I was afraid an accident would happen.
I finally convinced him to go but
about 2 seconds too late.
Lesson learned by me for any other
event.

He is rocking the potty training by the way.
He has come so far.
He is doing much better on the hardest part
for him, the dreaded BM.

His signs of going are very hard to catch,
once we finally learned them,
then the next hill
was to catch the signs at their first appearance.

We have definitely gotten better at noticing
and
he now is beginning to notice at times on his own.

I know this seems like too much information,
I promise no descriptors will be listed
but
this is a known issue,
their bowels function
differently than the Neuro-Typical.
As to why Autism is not a “label.”
It is a neurological disorder
in which their body is wired differently than most.
Now the “why” no one gets
but to us that is not a concern.

We don't need “why”
we have what is a Beautiful Little Man,
that views the world in a way
the majority does not.
I truly believe they are here to
teach us to keep our eyes open.

He only helps to teach us to
try to understand others,
be considerate, not judging,
to be accepting, and so much more.

He just his week had is best yet time at the Dentist.
His Dentist had a surgery come up
so we had a change to Logan's expectations.

He rocked it out!
This office is so understanding
of working with any kids,
but also with children with Autism.

I always found it funny when
his Dentist would explain
what he was doing and why
to me.
Try to explain the sensory aspect
Logan was battling with the appointment.
I would smile and say I understood.

The Dentist he saw this week,
just did the blunt asking the questions
of the exact diagnosis
and
when Bitty was diagnosed.

He sighed, a big sigh of relief
and said ( in summary):
Thank God, so many Parents
fight it, they wait so long
to seek help.
Kids are usually 4-5 by the time the diagnosis
is made.
I just smiled.
He stated about the difference Early Intervention makes.

I am aware.
I just smiled again.
He could not stop saying how amazed
he was with Bitty.
And that his teeth looked so great.
He gave us tips on how they will help
handle loose teeth.
(A concern of ours..)

They are a kind and understanding place
and
while he was talking to me,
all the women in the office
who were done with patients were playing with Bitty.

YES! A group of people he doesn't know
and
he was willing to interact with them.

What is funny, is Bitty seems to be able
to tell who is comfortable
with him
and
will open up to them.

Oh even last night, we were making a return
at a store
and the staff barely looked up
as she helped,
Bitty approached the counter
looked directly at her,
and clear and audible say, “Hello!”
(which sounds like
Hel-whoa)

He surprised us and her.
Then she opened up.
To us it is the power of a Child.
They are so much more than sometimes people give them
credit for.
They are our Hope and Future.

Our Sweet Bitty is growing
on his own curve
as the Pediatrician even said that.
I did my typical smile and say, “I know.”
He also rocked out his 5 year check up!
This was the first time he ever
responded to the eye and hearing test!

Yaaaaay!! 2 less appointments with Specialist.

*There was more I wanted to say but my memory fails me*

So our Little Bitty
weighed in at 32.5 lbs
as the pediatrician wrote “less than 5%"
and 
in the room said he is hanging 
at the 3rd percentile for weight
but he has gained weight since last year 
and 
that is what said
he is growing on his own curve.
Bitty measured up to 41 inches (15%)
he has grown 4 inches (I think that is what the ped said)
since last year.

Our Supremely Sweet and Perfect Little Bitty.

I sure hope the next 5 years slow down a little.


Sunday, December 15, 2013

Our Baby is 3! Oh My!!

Our Baby is 3!
How on earth did this time pass so quickly?!

Sweet D is doing well.
His words are relatively clear
and
there are many!

We are “shocked” at
how well is words are
and
we tend to say
well our “norm”
was what we went through with Bitty.

Speaking of that.
Daniel and Logan have
quite a little relationship
they go off and play together
and
actually have semi-2 sided
dialogue.

With potty training they cheer each other on.
It is so nice that they are excited for
each other
and
support one another.

Our sweet 3 year old
is mostly happy
and
when not will tell you,
“I am GW-UMPY!!”
In a growly voice.

He has learned to argue.
Him and Logan especially
at times just negate one
another to get the other one
riled up.

If D can get Logan worked up
he really milks it.

So like young siblings do,
they support
each other
but,
also like to
bug each other
at some points.

Daniel loves numbers and letters
like his big brothers.

He has learned a bit of scripting
from them also.

A lot of kids do it.
But then there is the flip to
all they do is script.
(Like Bitty.)

Mentioning he does a little
but that is the way that he
can really interact a lot
with Logan..
the pediatrician asked me,
“Are you concerned he is Autistic?”
And kept bringing it up.

I said, “No, we are not.”

Autism is not a “learned” thing
D's scripting is how he sees
he can play with his Big Bro
the best.

Since we have moved his
food sensitivities are getting worse
I can only imagine
it is due to the fact
we actually have trees and foilage.

The Dr. did not seem too concerned
and
acknowledged even though D
has an alternative diet
we actually
(Again like Bitty)
do our best to give him a
well balanced one.

He kept bringing up
the Autism concern question.
We are pretty good at acknowledging
what we see
and
not sitting in denial
about it.

Our D loves school,
has some friends,
OK..well he will very willingly
tell you about the 2 girls in his class.
(Not sure if this is good or bad for his age...
or will be a flash of what teenage years are like..)

He likes to sing, loves to read
and
at school loves his music class
and
the ability to “play instruments.”

He also LOVES outside.
Some days I think he would sleep
in the backyard if we would let him.

Which to me means some backyard camping
this spring/summer! :)

He loves trucks and being covered in dirt.
Well, only likes to be covered in dirt
that he planned to get dirty with.

He can be covered head to toe in mud
but if his sweet little self
falls into it (even if already dirty)
the accidental dirt sure upsets him.

He is an amazing little man
and
loves to rock his cuteness.

We hear from his Teachers about his
smile for a camera
and
his overall sweet self.


Happy Birthday to our DD!

He did well at his 3 year check up.
Passed all tests
and
comes in at
50th percentile for height,37.25 inches
and
70th in weight,33.75 lbs!
Just perfect!!


He was so thrilled for his Birthday.
He loved opening the presents








and
when he thought it took too
long to sing him, “Happy Birthday!”
He started to do it for himself. :)
He is a sweet little independent man
and
at times (which we are eating up)
wants to just sit and snuggle
with us.


Monday, December 9, 2013

6 years old!

Two weeks have passed since our Biggun' turned 6!

I can't believe it. 
Turning 5 was a big deal since he 
took up a whole hand!
Now we are moving another one?!

How did we get here?
We will blink and he will be 18...

I am not ready for that. 

He is loving Kindergarten
and
doing well overall. 

Just have to keep reminding him
even if someone else is 
doing something
that it doesn't mean he should. 

Whether it be peer pressure 
or 
trying to fit in. 

Our hope for this Smart Little Man
is for him to be proud 
of who he is. 
To not try to be like everyone else
to just be himself.

If people are not nice
or
making fun of you,
do your best to not let them win (by getting upset)
Be happy to be who you are. 
Stand tall and proud. 

He is super smart, 
loves to read, 
still likes to make music.
He doesn't do as much
breaking out into loud song with a beat, 
I am guessing due to the lack of echo
in our new home.

But he still does it,
sometimes as nervous habit
and 
other times because he loves music. 

He has two other kids in his class
he plays with the most
and
a few more that they are always excited to say 
Hi when they see each other.

When at lunch the other day one of his Teacher's
told me he was her Math Assistant 
and
 was helping other Kids with their Math. 

He has made a new friend in our new neighborhood
but
misses our old neighborhood friends more. 

He is sweet
 and 
caring
and
overall grateful for what he has. 

He brought a sheet home from school 
just before Thanksgiving
he said he was thankful for , "His two brothers."

His Teacher's are pretty good at getting the Kids
to express their own thoughts. 

He is loving having a yard with trees 
although sometimes
he needs the push to go outside. 

After a day at school he wants to sometimes veg on the couch. 
I let him do it some 
but then has to go outside. 
Or now since the time change
I make him go out first 
then he can veg. 

He also wants to stay inside 
to play with his rainbow loom. 
He is loving it
and
working hard at making things on his own. 

Anyways, our Sweet Biggun' is now 6, 
he impresses us every day 
and
definitely has days where he tests us also.  
:)

Here he is enjoying

his small birthday party..
Eating dinner with his Friends and Brothers

The Golden Ninja cake...
Being silly "striking a pose" (one of many he did)
Getting ready to light the candles and sing..

Blowing out his candles

                                 

Celebrating blowing them all out

Excitement over a remote control monster truck (you see D there mesmerized..)

We will get his "official 6 year old stats" tomorrow after school. :)



Wednesday, December 4, 2013

Another catch up attempt

So I hope to have a few minutes
and 
the moment I start to type the Little's start whining. 
We shall see how this goes. 

A lot is going on...

We had all of our duct work torn out, 
a new furnace and air conditioning unit. 



That took two weekends of work. 
And a lot of cleaning. 
We have new register vents downstairs
and
have a few ones to put in upstairs 
over the next couple of months
all of those will be replaced. 
They are round vents and cost more than a typical 
floor vent. 

My dizzy spells are better and the constant 
congestion of the Boys has dwindled 
now that we don' t have leaky ducts 
that are full of 40 years of dirt, dust, grime
and 
mold. 
We learned that people's chaseways are not usually replaced. 
Ours however, was rusted out
 and
 at one point
was duct taped together. 
When checked out, it was no longer connecting the 
two air returns.
 Instead of pulling air through the 
filters, it was pulling air from inside our walls
and
from our upstairs main attic. 

Mmmm...

Logan began potty training willingly at school
and 
after a week we took it over at home. 
His Teacher has done it this way before with much success. 
He is doing really well, honestly!
#2's are not but he is dry most every night
and will even stop playing (even if outside!)
and go pee!

It has been a few weeks. 
I have sent out questions on the Special Needs message boards, 
researched books, tips, anything. 
His bowels are not regular so some of our structured teaching 
tips we received the other year was on the "schedule"
so from what I see at times kids like him can take 
1-2 years for the bowels or maybe never. 
We shall see. 

We had his IEP meeting it went pretty well. 
There is a difference from county to county
and 
I questioned about a few things. 
That requires a post on it's own don't know
when I can get that done. 

Aidan turned 6!  
I cannot believe it!
A hand full and now starting the second. 
He is doing pretty well. 
I got his room situated and cool weather clothes exchanged
so he is doing better. 
He doesn't function well in the disorganized mess
of change. 
Once things get uncluttered
and
clear he does much better. 
Especially, in the comfort of his bedroom. 
He says he likes this house, he does miss the old one. 
I asked what did he miss. 
(Since he would complain about how hot the back yard was.)
He misses his neighbor friends.  
Totally, understandable. 
I have been in touch with their Mom
and 
over winter break hope to meet up. 

In the midst of striking some poses..he was being a goof!



Our Sweet Baby D is loving school
and 
the new backyard. 
Today is Day 7 of him potty training!
I really wanted him started before he turned 3. 
We tried sometime this year.  I don't remember when exactly it was. 
I want to say June, when he was 2.5 like Big Bro Aidan. 
It just did not seem like his time. 
So, here we are and he is doing great. 
By Day #2 all on his own he did a #2 in the potty!
Now, he is similar to Aidan and a bit timid on 
the big potty and prefers the little ones. 


He has also become an example to Logan of how 
we mean "pooping in the potty."
There has been some potty competition
by their choices 
but it has only brought more motivation for them to go. 
We will go with it unless they get mean
but so far it has only seemed to bring them 
closer together. 
The Little's are really interacting more 
and 
have conversations with each other. 
It's beautiful well, until they start getting mad at each other. 
D's food sensitivities have become worse. 
I am wondering if it will calm after the nasty from the old duct work
subsides. 

Our big dog Cooper has had some problems too. 
He went to the vet just over a week ago.
After a long list of medications 
and 
a bath to help soothe his skin. 
He is doing better.
The vet has called to check up on him. 
And he seems to all of a sudden
fit into the the hypoallergenic 
state of our family and/or not typical reactions
to medications. 
He is on a steroid which usually makes people/animal gain weight/retain water
he has gotten skinnier. 
The vet and us are on the fence if this means
his skin was that swollen (and very well could be)
or 
if he is having a bad reaction to the steroid. 

Andrew's Thanksgiving days off, turned out to him being at work
every single day of the break. 
Working late at night to early morning 
just so he could be a part of Aidan's Birthday
and 
take care of what needed done at work. 

I ran another 5K.  I did not train for it
and 
with the move have not been as active as I was. 
And the worst part I walked a small portion of it...
I need to find the way it works to maintain what I was 
doing before 
and /or 
more. 

I did however get things more organized. 
Our office is not unpacked
and 
a large table is my sort. 
BUT I am able to sort!

I also have been able to some checkbook balancing
and
bill pay. 
This is what I did since babies were born. 
We do it together
but I do the data entry
and 
put things where they should go 
and 
make it all work. 
Andrew has been doing this since well 
before March because I hit a point
where I just could no longer do it. 
And by recommendation from my 
neuro-psychologist that I was not ready for that 
and it would come with time.
So, 8 months later I am working on it. 
Funny thing is, I think I saw her at Target just this past Monday. 
I am not sure and could be totally wrong
but it was  a woman who looked like her. 

19 days until I meet with my neuro-oncologist and get my next MRI. 
I have had a lot more headaches and a WONDERFUL (sarcasm)
migraine. 

I am also in the process of battling our insurance company with 
Logan's gene mapping. 
It came back with nothing showing any "reason"
for his blood sugar issues, odor-ific atonic episode, his eye
flitting into the back of his head, his grey face tone in stress
and 
limp moments with no odor. 
It turned into his Geneticist facing me
and 
concerned with me. 

He does have some off genes from me. 
Two with no real known significance 
and 
one that they know causes issues.
It won't become an issue until later in life. 

After a series of questions she asked me, 
then she informed me of the gene
and
then told me I must notify all of my 
doctors immediately. 

My family practitioner wants me to see a hematologist 
So, that is in the works.  

It is a rare disorder that some people with the mutation do 
not have any issues. 
Others do. 

It answers a lot of issues I have had. 
It also has a very long list of medications that are not safe 
and 
that I can have a bad reaction to. 

Quite a few medications I have pointed out to Doctors 
before knowing anything of this
are on that list. 
So, like I have had the 1-3% reactions
yup, that would be where it came from. 
And issues I have had for years 
with no answers only a few hopeful suggestions
from a few good doctors. 
Now, it seems there are answers. 

So, I think this covers it. 
Yet another long post. 
Never boring, never dull. 

We did get our tree up 
and 
more Christmas decorations to come. 
And having some wonderful interactive moments with 
our Boys with each other
and 
all of us together. 

Three years ago, just before D's big eventful arrival
we never could have guessed where 
we would be right now. 

We have had a lot of big down hills in our
roller coaster of life, 
but we are here together
and
 getting to enjoy all of our 
ups together. 
No matter how  little they may be at times
they are indeed ups. 





Monday, April 15, 2013

Logey's 4 Yr Update and Momma's 31 updated

Bitty had a decent 4 year old check up.
The Doctor was thrilled with our
hopes and plans of
where he will be.
He was thrilled again with
all the help we supply to him.
He was even more thrilled
that we maintained it through all of
what is going on with me.
Bitty at 4 is
      37.75 in tall (5%)
and
      28.75 lbs (< 3 %)

He asked about his diet.
We explained how picky he is
and
how we work with it.

He was surprised and excited
and
said
we are giving him the best
well balance diet with
his picky self.

Yes.
Another area showing
Determination.

He was super happy.
He also remembered the other
Doctor talking about us
and
our situation.

I told him,
I am 31.
I won't die until 85-95 years old.

I am determined.
It will be done.

I know it is hard on everyone in our Family.
I know it is super incredible hard to even
try
and
wrap your mind around it,
accept it
or
really anything about it all.
It's not easy.

I just know I am stubborn.


I have for quite sometime wanted to be a Mother
I wanted only that.
OK, well, a wife too.
:)

But this is what I wanted
and
it is my job.

It will be done
and
continued to be done.

I won't lie.
Some days are not easy,
some are far from graceful.
Some days (more than others)
may be sending me to the
deep end
and
truly trying on every nerve
and
patience.

I am incredibly far from perfect
or
patient.

But I always try to go with my gut.
My Gut says, I will kick it.
I am determined
and
will do what we need to do for our Boys,
our Family.

God is giving us these challenges for a reason.

We get told we do well at things we do by a variety of people.

We don't see it that way,
we just see it as what we do
because we are supposed to
and
what we feel is best to do.

Perhaps we do, maybe that is part of why
we are challenged
because we will
perhaps get to something
super helpful for others out of it.

Knowledge, research, fund raising,
advocacy,
or
perhaps just simple enough
basic understanding
and
acceptance.

Who knows?!

I do truly feel we will slowly
be shown.

It will all be OK.
We will all find a way from it all.
When and how?!

Who knows,
I can only trust that He will
let us know at
the time we are needed.

It will all be OK.

I got my blood tests back today.
The NP says everything is normal!
It seems it's just the Keppra
and/or
stress
affecting how everything is going.

Today, after carpool for Logan and Aidan
I was able to walk our entire neighbor hood
with D, my Mom and our Babysitter.

I felt a little funny (kept it to myself)
but then felt a tad better.

I took a shower, fixed my hair,
ate some lunch,
took Logey in for his 4 year check up,
stopped by Target
and then headed home.

Finally at 5, my head pounded, felt swirly/dizzy/pressure/strange.
That is the longest it has taken to get to that point
AND
I did not nap.
I did take a few bouts of rest sitting today.
But HEY!!!
That is some progress!!

We'll see how tomorrow goes.
It will be just me and the Babysitter.
But we will see.

I had dinner and enjoyed it!
I drank some beer.
Yes...I did!
IT'S MY BIRTHDAY!
I am here!
I will celebrate.

I may get a little slow sometimes,
my words may get a little mixed up
but
I AM HERE!!

I am now 31!
Ready to feel like I am finally
starting my 30's.

I will WIN!

My WONDEFUL Boot Camp people stopped by yesterday.
They brought me Gigi's Cupcakes and beer.
:)

They are AWESOME people.
Thanks for Everything Ladies!

Thanks for everything Everyone!
Thank you for kind thoughts and prayers,
for Food
or treats.
We appreciate it!

I am so HAPPY to have a glimpse of being
part of me again
and
hoping it continues
over the weeks.

No matter how it all goes.
I WILL STOMP IT!!

Uploading photos and videos from the real camera...
Hoping to post those in the next day or so.

Thanks Everyone!