One day over 6 weeks since
the craniotomy.
Yesterday we were at Duke
meeting with the
Family/Marriage Therapist.
It was good.
Really nice to sit down
and talk with someone
non-biased.
We will see her in another
two weeks.
(Our choice.)
This morning we took Logan
into the Geneticist again.
So, after meeting our
Genetic Counselor,
getting the run down.
signing consent,
having our Geneticist come
in and talk
all the details behind the
test,
Human Genome Exome.
Then back with the
Couselor,
then checking out,
getting set up for the lab
work
via phlebotomy.
Then waiting, watching
people stare at Logan
chasing all around the
waiting room,
then launching a lego car
about 6 inches from Andrew
and
watching it shatter after
smashing
into Andrew's forehead.
We got called back for
our blood draw.
Andrew's turn,
mine
and
we finished with Bitty's.
Now, we wait for results
in 4-6 months
as they filter through
17-20,000 genes
and
we hope to perhaps to find
some answers.
Since it seems we all fit
into the
atypical pattern of
issues.
Yeah...I could do an whole
extra post on that kind of thing
or even type about
really our basic learning
of the need and/or
hopefully help of this gene testing.
So the purpose of this
post was to touch base on 6 weeks post op.
Yup..take me an entire 1
page of a word
document of typing to get
to this point...
Haaaaa.
Yeah.
Can I claim tumor related
ADD?
Or
like I said in a video I
posted to Facebook
perhaps now it's
ADD/memory due to a hole
in my brain??!
I used to be pretty on the
ball on
everything
and
then it slowly started to
drop.
Blame it on the Kids,
stress,
all of the above.
Or
perhaps not.
So, 6 weeks and one day
ago
Arnie got kicked out.
Bunk you Arnie.
Don't come back
and
if/when you do
I will stomp you again.
Yes..you suck.
I will win.
I am stubborn, hard headed
and
can be competitive and
motivated.
Go Jump off a bridge
Arnie!!
Yes. There is a spoonful
of my feelings.
As of yesterday I feel I
have made it over a
wall of challenge.
I feel like a version of
myself.
I know I am not 100%
but actually
feel like I can do some
things for the kids.
Last week I started
wearing my contacts again.
My eyes weren't so happy.
My left eye still hurts
like a foooool
to look up or roll it.
Yeah...since Arnie was
putting pressure on my left optic nerve.
I hope it will lessen with
time.
I figure so, since I still
have some swelling in my left temple area.
My eyes will go blurry
sometimes with contacts.
Not sure if I need to see
the eye doctor again
or
just more time
and
sometimes they feel like I
am looking through a magnifying glass.
Who knows?!
My head is actually not
totally hurting
for the first time in 6
weeks too.
BOO YAH!!
Yeah..and I can lean
forward with out
a ton of pressure building
up in my head.
I can dry my hair after a
shower
and
straighten it now
with out having to take a
rest.
BOO YAH AGAIN!!
I WILL WIN FOOOOL!
Yes.
The Boys have done great
with the last little bit
of me being able to do more.
Again, first goal is,
take care of my Boys.
The Kiddos and my
Wonderful Husband.
The house may not be
cleaned,
the laundry may be super
behind,
but
the hopes of the basics.
Since my Aunt is with us
I was able to nap today
Yeah..I took a two hour
nap
and
here I am tired still.
BUT not Exhausted.
Soo,
I will take that.
I will take that.
Once my body gets used to
taking care of things here
I am back to Boot Camp
Class.
I am so excited!!
Forward steps,
it may be baby steps
AND
I don't care!!
I mean come on, every bit
moving forward is
AWESOME!!
I mean again...come on
it's like the things
with our Bitty.
He follows a different
ruler.
He takes baby steps.
I mean today at his
appointment he
asked for a diaper change.
WHAT??!!
Yes, new for us!!
This is forward motion
towards potty training
for
our Baby D he will
probably be in a a few months
for
Bitty it could be a few
months
or in a
year or more
but this is forward
progress on it for him.
He is taking us there at
the pace that works for
him.
If they both want to do it
at the same time
AWESOME!
That would be the first time in 5 years
That would be the first time in 5 years
we could have break from
buying diapers.
However, we will probably
have 1 in diapers which
would be a break
for the first time in 2.5
years.
Yup and nice to your
budget too!
So we shall see.
Again, so baby steps
peeps!
They are good!!
It's whether you decide to
see it or not.
We decide to.
So yup.
6 WEEKS FOOOOOOOLSSSS!!
Here we are.
I feel kind of like me!
YESSSSSSSSSSSS!!!
Which is great news for
all
but
especially all the Boys I
live with.
Who ever thought as a Mom
you would live with 4
Boys!
Heck if we had more kids
they all would be Boys.
My gut says it.
I don't doubt it.
It's what was meant to be.
I am so grateful for all
we have
and
all there is.
I think Andrew is there
too.
Good. Just showed him
what I typed
I got a nice head nod.
:)
Yes because when I type I
use my nice ear buds
with usually one silly rap
song
yeah..
Lil Jon and
the East Side Boyz
and
Ying Yang Twins
Kings of Crunk
“Get Low”
…
inappropriate yes it is.
If you ever saw
Sandra Bullock's movie
“Two Weeks Notice”
and
she danced around a tribal
fire
with
Betty White
and
sang her own song.
This was it.
So that is what I think of
when I listen
to the not so nice
lyrics..
I think of her dancing to
it
and
can't wait to start
running again
and
using this song as along
exercise motivation.
Yup.
1 comment:
Oh... what fun with Genetic Testing. We are doing the same one, Human Genone.. blah, blah. We worked with Yazmin and she was wonderful. Hope you got her too. Good luck with everything.
Jill
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