Countdown to the Duke Tumor Appointment

Less than 24 hours.

We don't totally know what to expect

about the appointment tomorrow

or

even how long it may last.

Yeah...I think I am going to bring

headphones to listen to music

to turn my brain off while

I wait.

I told Andrew so if he wants

to do the same

that way I don't leave him hanging.

We called the Ped again today

since L and D have had

bowel issues for over

10 days.

The Nurse told Andrew

that we are doing everything for them

perfectly

and

more.

That they are really impressed

and

if they still have it tomorrow

we need to take them into

sick hour in the morning.

He said, “We won't be able to make it.”

But we could do Tuesday.

So we will see what happens.

Yep.

Logan kept going all night

and

screaming.

I will stop the details here.

I have wanted to go back to Church for a long time.

After we started to have such a hard time

with Logan especially right after

his diagnosis

we stopped going.

I would take Aidan by myself

and

Andrew would stay with the Littles

but eventually

Andrew would work on the weekends

to help compensate for the therapy costs.

I was not willing to attempt taking

them all by myself.

If we ever had a date night on a Saturday

Andrew and I would head to Church

before dinner.

Yeah.

So I hoped we would try again now

I have some plans to hopefully help

the Boys.

BUT since Andrew and the 3 of them were sick last week

we did not go

and

I took care of all of them.

Today my Mom picked me up

and

took me.

You know since I can't still drive.

I felt too horrible yesterday for not ever resting.

I had to use a wedge again

because for some reason

some extra fluid has come back into my head. :(

I felt a little  tiny bit better this morning

but insisted on going to Church.

It was so nice to go back.

I was very overwhelmed to be back

and

super grateful.

The Homily was so appropriate too

for all we are going through.

Amazing.

I have missed it horribly.

But it was hard work to be there.

The entire Mass I could only hold my head to the left

it felt terrible if I was  holding my head upright.

My left eye would roll and twitch too.

By the end I had a horrible headache

and

nausea.

But I am so glad I went.

I have rested to make up for it.

I still don't feel great

but

it takes time.

I also held Logan last night.

He was so upset it was all I could do for him.

We need to see how much he weighs

when he was born

you felt like you held an empty blanket

with a baby head in it.

Last night I could feel his body

but feel minimal weight behind it.

We have gone waaaaay out of the way to find

food he eats to try and get him

to put some back on.

Hopefully next week everyone is well

so we can all go to Church

but until

he recovers we are not

taking him anywhere to

get other people's germs.

If we can help it.

Here's our Beautiful Birthday Boy!!

Hopefully we will get some good photos at the Family

Party next weekend.

He is loving today because

everything is so simple

a few presents he likes

and a basic schedule.

He is so happy.

Thank you Lord for giving him some time to enjoy it.

We are eternally grateful.

I am sure I won't sleep tonight

and

will be up by 4 am which you know

will give me plenty of time to get ready for my appointment.

We will keep everyone posted

but

Family will know first

especially if we found out anything.

Thank you everyone for your kind actions, thoughts and prayers.

We are so grateful.