As if things are crazy enough

I will write more of the details of the appointment one day.

In order for my brain to heal

I am to not talk, not exert myself

physically,

and

truly sleep as much as possible.

Otherwise it will take longer to heal.

My frustrations hit a high the night before.

I punched a stud in the wall.

That way I did not have to fix drywall.

Barely slept 4 hours

and

had adrenaline filling my body in

anticipation.

I will go more into the feelings sometime.

We spent 4 hours there

and

talked to 7 different professionals.

*1^st Nurse took vitals.

*2^nd Nurse took meds (only one) and basic history

8Met with Neuro-oncologist Physician Assistant.

Tooks a migraine, tumor history, story.

Job list

and

did an eval.

*Confirmed I have

memory and speech deficits

especially when tired.

*Also, said exercise is great and perhaps

I can do it sooner.

*Then tested my heel to toe walk

and I couldn't do it.

I began to get teary eyed.

*He showed no judgement re: punching a wall.

He was nice.

*He also mentioned how unpredictable astrocytomas are

and

that they have a very high chance of coming back.

They may come back soon or in 20 years.

Then met with my Neuro-oncologist.

She had us explain what we know about astrocytomas.

She did not want to repeat what we know.

She is super nice.

*Then she showed us my pre-op and post-op MRI.

*What we learned that we did not know before

my tumor had 5 tentacles.

:(

Andrew and I could see them without any help.

:(

They were in my short term memory area

and

optic nerve.

*She confirmed to give my eye some time to heal

since it still gets blurry and then twitches around my head.

*If still there in a few weeks I have to meet a neuro-opthamologist.

*Also talked about post op MRI, we got to see the hole in my brain

it will get a little smaller but will be there forever.

MY PLAN:

*In 6 weeks I have another MRI. For the next year I will have MRI's every 2 months.

She will look for the tentacles coming back

or new spots.

*If new spots then may need more surgery depending on where a new one is.

*If the tentacles start growing I will immediately go on chemo.

*It is called Temodar.

It will be a pill I take at home at night.

Shouldn't need any blood transfusions.

Should have little to no side effects.

Shouldn't look sick.

*IF we make it 12 months with nothing

then the next year I will get MRI's every 3 months.

Then we met a neuro-psychologist.

She wants to meet with me in a few weeks

(after more healing)

and

will do a 2-3 hr evaluation

to get a baseline

of where I am at.

*I will then meet with her weekly

to be taught how to

compensate.

*She confirmed that prior to

tumor removal I was having

short term memory issues.

*She also asked about marriage/family therapist.

We both said, 'YES!'

We will get a call soon.

This is a hard thing to wrap your head around

and

we both had talked about

needing/wanting to talk

to someone about

everything

the night before.

Between this and all the stuff

starting to pop up with issues with

Sweet Bitty.

We then talk to a research person

and

signed up to give my information

to their research to follow

how everything goes.

Knowledge is power.

If this may help it is worth it.

Then we met with a Clinical Social Worker.

She took more information

to give to the Therapist.

She also took the Kids information

to talk about the Child Specialist

to help them all out.

At home they are having some trouble

she confirmed we are on the right

path and doing well

but that they are happy to guide us

in our hard areas

and

meet the Kids too.

So yes.

The extra details and more story like will come soon.

More details regarding the next steps with Logan will come soon

and

D is still not well either

and

we have learned new stuff with him.

As the Ped said, “If I had a magic wand I would use it on you Guys. This is a lot

of crazy stuff.”

Yup. She also offered to scream for me too if it did not hurt my head.

We like this one Ped she is awesome.