Ring ring..

Easter was low key for us.

We stayed home

to keep

any germs to ourselves.

The Boys all actually ate some breakfast!

That is great!

Their poor bowels are still

a little shaky

but

they seem to be on the mend.

Thank You Lord!

Bitty now has 6 days until his Birthday!

We are postponing his birthday

to

make sure all the germs are down.

If you read about Norovirus

you can be contagious for almost 2 weeks

after showing

you have signs of it.

So we figured

we may as well try and kill the germs

from us for sure.

So we are now 1 week away from my consult

with

Duke Cancer Center

at their

Brain Tumor Center.

I am still having a hard time swallowing this.

I really want to go run.

I want to run

until I don't feel

mad anymore.

I don't like feeling mad.

But I am.

:(

My adrenaline kept me through the last few days

with everything

but

yesterday was hard.

Yes..

Aidan woke up at 5a

with a nosebleed.

Aidan and Logan

are prone to nosebleeds.

We have to use humidifiers

all year round

or they come.

They are fierce too.

Like super gushy ones.

Yeah..because

that is how we roll.

Always have a small level of chaos.

We slacked on the humidifiers

because of the stomach

bug...we know better.

We can skip 1 night

but any more than that

they get nosebleeds.

Yeah.

I was so tired yesterday morning

I had no strength to

apply pressure to the poor Kids nose.

Then I had to crawl back to our bed

I couldn't even walk.

Yup.

Uuuuugh.

By the end of last night I

felt horrendous.

I was so disoriented

the pressure in my head

was super increased.

I was super tired

and

started growing a fear that

maybe I would have a seizure.

I almost forgot my meds too

and

took them late.

:(

I was pretty sure it was fear

but

felt so weird.

Luckily, I fell asleep

but

Poor Andrew

stayed up to listen to me.

I was afraid too.

I was still feeling strange

this morning

but

not as bad.

I wasn't making coherent sentences

very well either

but

as I woke a little more

they got better.

My memory is still pretty slow.

My thoughts take a while to come out

sometimes.

That happened a lot today.

I took a three hour nap today.

I was leaning to the side too.

My head was heavy

and

it took all my effort to walk across our

living room.

I took a three hour nap

and

now kind of feel like a little human.

We took the Boys on a little walk

around our street

but

I can't really go any farther than that.

I don't want to regress.

I am supposed to get better

and

do that by not over exerting myself.

It will take 3 months

for me to not be as exhausted.

:(

I am going to try

and

use my will power to make it wrong.

Here were are almost 3 weeks post surgery.

Whoa.

Yup.

At least Andrew went out after work tonight.

I've been on him about that.

He needs some time for a break too.

He needs to go out

and have fun.

I am glad he did.

Here's to Tuesday!

I have to call my Neurosurgeon Office (he's on vacation)

and

he wanted me to check in on the

neuropathology results.

He checked on them last week

and then said

for me to try this week

so we know

about it before we head into

The Brain Tumor Center

next week.

Oh yes and I

had to call Logan's Geneticist today

and

still am waiting on the call back.

Let the phone ring tomorrow!

Wheeeeeeeeeeee.