Dreams and Neuropathology

I'm a little slow on days

but

yep, it's Wednesday.

The Boys are doing much better.

I got a call back from the

Geneticist's secretary

yesterday.

She heard the basics of Logan having

blood sugar issues with a stomach bug.

She kind of just acted

simple since most

kids at the ER

 get glucose water

to help hydrate
and
fix a possibly tiny bit off blood sugar.

Well, that is typical

but not typical that the Kid's

blood sugar stayed in the 40's

and

spiked over 150 then up to 250's

then

crashed right back down into the 40's.

I explained that

and

she hung on every word.

It turned out Logan's Doctor

was is on vacation

and

will be back tomorrow.

The Secretary wanted

all records from the ER

sent ASAP

and

she was emailing the

Doctor too.

So then I had to get a hold

of the ER.

All the paperwork they give you

says you have to wait 7 days before

you request records.

So I called and left a message

that our son

had

severe issues

and

that his Geneticist wants

his records ASAP.

They said in their message

that they would call back in 1 business day.

After my message they called me in just a

few hours

and

had no issues getting the ball rolling.

They were so nice

and

helpful.

I then called the Neurosurgeon office

to see if they had my

neuropathology from the tumor back.

Dr. Grossi is on vacation but last week

told me to call this week to check.

He is pretty sure there should be no curve balls

but

he wants us to know before

we hit the Brain Tumor Center.

I had to leave a message with Becky

she usually calls back within

a few hours.

When she takes a day to call back

I usually get told to come in

because

they don't want to tell me

these crazy things over the phone.

Well, she called me this morning.

She said Dr. Grossi will be back tomorrow.

She also said so far no information

she looked for it

and

will keep looking for it

and

call me back when they find out.

We are three weeks post op now.

They should have the answers.

My Gut keeps telling me

that they are going to call me in.

Perhaps I will be wrong for once.

So far I haven't been.

A year ago, when I had my first ever MRI.

I had a dream that I would have

contrast.

Even thought I wasn't supposed too.

They stopped midway in the MRI

and

contacted the radiologist

to tell them what they saw

and

he requested contrast even though

my NP

did not request it.

Strange huh?

That was Friday.

I met with my NP on Monday to review the results.

I woke up that morning with

the word

“TUMOR”

in my eyes right before I opened them.

Strange.

SO Andrew stayed with the Boys

and

I headed over to the NP.

She sat with me and said,

“You're blood tests are normal. Your MRI is not.”

I smiled (I did not want to cry.)

I said,

“I know.”

She had already called Dr. Grossi

and

had me set up to meet him the next day.

Sooo....yeah.

Dr. Grossi wanted to do a biopsy last May

but

he let me wait.

The Brain Tumor peeps thought it was

a congenital tumor

even though Dr. Grossi thought it was a glioma.

So he said we could wait

and

do an MRI January or February 2013.

So I said,”Sure.”

I needed time to let it sink

and

determine what to do.

He told me to push the idea out

and

just live life for then.

Well by October 2012 my gut said I needed to

get the MRI done

November or December 2012

so if I needed surgery we would be able

to know that was how 2013 was going to go down.

So, they said that was fine and set me up for December.

So 3 days before Christmas we walked out of that

appointment with

the biopsy scheduled for January 21^st.

Then while waiting for the results.
I had a dream

that they called me told me a

name of my diagnosis.

I asked them to spell it.

I remembered how to spell it when I woke up.

I did not know what the heck it was.

I had never heard of it.

So I googled the word.

Sure enough it is a word of a protein

that deals with brain tumors.

WT...?!?!

Sure enough when I called after waiting 2 weeks.

(They said I would know if there were results by

2 weeks.)

Guess, what they took a day to call me back

and

when they did told me I needed to go in.

Yeah...

So...I explained how that appointment went.

Since then I have had another dream that they

called me to tell me

there is a curve ball

and

that it would take a few days to tell me what it is.

Maybe this time I will be wrong.

Wouldn't that be nice?!

I am still extra exhausted from pushing myself.

Exactly what Dr. Grossi said would happen.

He said after 3 months or so I would stop getting so tired.

Ugggh.

3 weeks.

I don't want to wish away time

but I am not being

patient.

I am trying. I am praying profusely.

I am thanking the Lord for everything

and

also begging him to give us a little reprieve for now.

The Boys seem to be doing better.

I need to put my focus back onto

Logan's Birthday

and

what we are going to do for it.

We are postponing his Family Party for a week

to make sure we hopefully

nix all the stomach bug germs

so we don't spread it to anyone.

Here's hoping!

We also need to figure out what

we are going to get him too!

We don't know what to get.

He needs at least a little something.

1. Aidan ready for Spring Picture Day
2. Bitty being a King Ping
The rest are Easter morning.  Our Sweet Boys actually starting to
feel a smidge better and showing off their non-candy Easter Bunny items.