Saturday, May 25, 2013

The Lessons for Patience


So, I have heard a few times
about how positive I am being amongst things.
I guess I can be
 but
I am at a low point lately.

At 10 weeks post-op I have hit a bump
in the road.
I am good most days but hit
a lull I can't quite seem to get out of.

I lose my patience with the Kids
and
the mess that is accumulating in the house.

The bathrooms that need cleaning,
the floors that need vacuumed
and
mopped.

I thought I could handle it on a slow pace.
So far, not quite.
It really just depends on how the day
with the Boys go.

Last weekend while in at supreme exhaustion
Andrew was picking up the mess that
has continued to be fed by the
Boys.
He ran the vacuum, made lunches, dinner,
dishes etc.

My Husband is a great support
and
a bearer of mass weight on his shoulders.

I am really only at 50%
we make it through
thanks to him.

He helps beyond belief and then some.
We don't get much time together
I am usually asleep
or
at a point lately of horrible frustration.

I did well for the first 9.5 weeks.
I am now frustrated.
And so incredibly mad at myself for being frustrated.

The mass destruction of toys
always bugs me.
Therefore I clean up or make
things go away.

We have quite a bit talked about reducing the
amount of things we have.
They aren't necessary.
Trying to convince people
that the Boys don't need toys galore.

There is just too much.
We have talked about reducing
for a while now.
The need is there
however, the energy and focus on
my part isn't there yet.

I was so tired yesterday that I
wanted to make popcorn.
Over the course of 4 hours
I got out the kernels,
the pan, the oil,
the sea salt
and the lid.

Yes, it took four hours for me to
get the focus to get out
the needed items.
By the time I got it all out
I was too tired to make it.

Insert frustration, anger,
minimal patience.

So on a Friday after a long week
my Husband comes home to a
torn apart house,
me who was half awake on the couch,
the Boys running rampant,
stuff sitting out in the kitchen
from my popcorn attempt,
and
me super grumpy about what I did not do.

I did however, wash sheets, take the Logan to school,
ran to a grocery with Aidan and Daniel.
Fed them lunch but never got that quite cleaned up,
fresh sheets on the little's beds.
That consumed all my energy.

How, do I release frustration?
Exercise, physical activity..
How do you do that when you are exhausted?

It was just a junk day.
I was asleep before 8p
and in bed until 7:30a today.

7:30 is when Boot Camp is on Saturday's.
I woke up too tired to go.
After all that sleep, still tired!

Insert more frustration there.
**Remember, I was told by many specialists
not to get frustrated at what I can't do
to give it time**

My 2 cents is:
I made it this far, why NOW?!?!

Well, the weather is beautiful, actually cool
minimal humidity.
Blue cloudless skies, nice strong breeze.

Andrew headed out and mowed the yard, edged, trimmed.

Then all 5 of us headed out back for fresh air.
Filled with supreme allergens
so now congestion, hoarse coughs,
runny noses
and
antihistamine taken preventatively.

I did a few out door chores in the back.
We took down the second level of my raised garden.
The dirt I made last year?!
GORGEOUS!!!

Yes, I bought all top soil, compost, etc.
Made some supreme soil to grow our veggies in.
Yes, I am bragging, it's super pretty!

I took down some briars growing
from our neighbors yard into ours.
Those root systems are strong.

I took it out on those guys!
Needless to say, I was just clipping briars
also reaching through the fence (the house next door is
empty and in pre-foreclosure :( )
so I have to get a handle on those briars
because they get into our yard
and go right where Logan and
Cooper love to play.

So, yes, after some clipping I took a break.
I sat on down, out of breath, and wiped.
Explaining to Andrew that when I say I
go to Boot Camp and modify my exercises.

I REALLY REALLY do!
Not that he is one to convince.
He knows and trusts me
but it was my 2 cents
due to some critical vocal parties.

I caught my breath
and
trimmed my rose bush that is
from my Great Grandma Crase's house.
Everyone has one in their yard.
After she passed away,
my Grandpa (her oldest son of 8 children!!)
made sure all of his Kids and Grandkids
have a part of her bush to keep at our homes!

I trimmed some crazy parts
and
worked on some bushes I had
moved into our back by our AC's.

That helped me relieve my frustration.
To see things how they are.
Another lesson of learning patience.

Lots of things going on, patience is key and so is trust.
There is more than must my tiredness, a few things we aren't at a point to talk about yet,
Daniel having an allergic reaction but seems to be heading
down it's nasty path
of more ring worm.
YET, NO ONE ELSE HAS IT!

A long frustrating call with a nurse at the Ped's office.
That is a whole other post of how one of my soap box moments.
Which is more so give another side others don't always get to see.

But anyways, Everyone has difficulties.
No matter what they are.
We all have them, all on different levels, all
at different times.
Anything easy is not worth having.
We all have our paths we are lead to,
our paths to follow or stray from.
Our lessons to learn
and
hopefully learn something to help others,
to make the world a better place.
No matter how little or possibly
seemingly irrelevant.
It will help someone somewhere.
We are all different.
If we all were the same how
boring would the world be?!

This is all here for a reason,
however given.

Keep Hope, Faith, Patience.

From a friend I was given a wonderful song to listen to.
A video to watch.
It is 22 minutes.

It is wonderful and sad too.
It is about a teenager who passed away this week.

But, his way of handling it.
I bought one of his songs
and will soon
buy the others.

It goes to a great cause
and
to me his song, “Clouds”
it is about his way of dealing with a terminal illness.
But, listen to it if you feel you want.
It can be put into anyone's difficult times.

To me it is a motivating song.
Take your chances while you have them,
try, you can do it.
Don't let things bring you down,
find some good in it.
Take on the challenge!

So, my main purpose
is to spread interest in this teenager.


He has a web site:

It has everyone on it.
His music, his story, the video.

It may bring you to tears.

Keep hope
and
of course buying his music
(which is addictive to me)
goes to a wonderful cause.

A simple and easy on the budget donation.
To something some may feel strongly about,
if you don't
that's OK.

We each have our own things that mean a lot to us.

Slowly, digging out and letting out frustration
and
Thank you Dear Lord for giving me
such a wonderful man
that I am sharing my life with.

I will try to keep my patience.
A constant lesson we are being given.




Wednesday, May 22, 2013

10 Weeks Post-Craniotomy Novel and Neuro-oncolgist visit


10 weeks under the belt.
I guess in a few weeks I will stop counting
at least on here.

I think it will always be on my mind.
On Monday was my 2 month post-op
rescan.

So, yes it was a little over 2 months from my
last MRI, but now we are on a roll.

Andrew as super busy at work.
I hit the MRI mid-morning
by myself.

First time ever.
This was MRI #7 in 15 months.
So, yep.
15 months 7 MRI's
and
in the last 4 months
2 CT's.

That can at times be hard to swallow.
I at least get a break
for 2 months now.

I am sure there will be a few more things done before then.
Yup. We never want to stay dull.
You know gotta maintain our
chaos level.
If it calms too much
it is a calm before the storm.
So please just maintain our typical
chaos.
Norm is a bit nicer than a huge storm.

I tried to keep the MRI peeps entertained.
You know.
It was at a mobile MRI place
I have never been before.
So they don't really “know”
so you slowly tell them.
Yep.
I had the nurse and the tech laughing pretty good.
They smiled a lot.
You know Monday's can be crazy
so if you can keep someone's
nice,
You may as well.

Around 2p we left for my
neuro-oncology appointment.

This is something that is interesting.
You know where you are going
but then
you pull up outside
Duke University Medical Center.
Yet, I don't go into the main hospital.

Where the Brain Tumor Clinic is
is at
The Cancer Center.

Yep, so, it's hard.
You feel like people look at us
wondering where we are going.
There are a lot of people older than us.
Yet, here we are.

I know there are people our age or younger
doing the same thing
but you don't always see it.

So we sign on in,
I fill out
my paper work.

Then the Nurse calls us back.
This time was a few less professionals
then in April.

Weight, check, BP, and a few questions.
Then move into our room.
This time instead of meeting with the PA
we met with a NP.

She was nice.
We had her laughing pretty good.
They touch base on all that is going on
and
yup.
We keep them entertained.

She was super nice.
She asked me a lot of questions.
Then checked me out.
Typical, listen to your heart,
your breathing,
then they (typcial for me)
check my peripheral vision,
check to see how my eyes respond to light,
look down my throat.

I then get to do a memory test (slight FAIL)
they give me three simple words
to remember.
So since I failed miserably last time
I tried even harder to remember.
I said the words out loud a few times
and figure I was good.

Then she asks me to spell, “House.”
Then spell it backwards.
Then, OK I am kind of fuzzy here and
will probably not mention it all.
OK..I know now, subtraction questions.
Then check my reflexes, balance,
strength.
While trying to explain what I am doing
Edit: Her telling me what I am to do
and me slowly processing the task she is asking to test 
strength etc. 
she can see the amount of time it takes for me
to process the information.
I am slow.
It happens.
And that is OK, but sometimes
something I don't always notice
but it's pretty obvious there.

Then after all that.
What are the three words?

I said, “Uhhhhhhh...”
Then I remember (I try to think pictures.)
It helps me.
“Cake.”
She said, yes.
Then I thought a little longer....
Ummm....
uhhh......

“Tree?!”

She said, “yes!”
and
then just like last time...
The last word...
I don't remember.
So I think, and think
and think...
then she gives a hint.
I got a hint last time
and still answered wrong.
This time the hint helped
and I said, “Chair??!”
She said, “YES!!”

Whew.
Yes, so cake, tree and chair.
I had a hard time to remember it after 5-7 minutes of time
passed.

She said, my MRI looked pretty good.
I asked about the mentioning of “Oiligoglendroglioma” charateristics
inside it all.
She said, there are some parts that look like that too
however, it's not enough to change it to a
“Mixed Astrocytoma”
they are still
sticking with
“Grade 2 Well-Differeniated Astrocytoma, Recurrent.”

Whew!!!
I am having some hormonal issues
so I asked about if that is typical.
I have already had to go to my Family Doctor
due to some issues
now I have another appointment I have to see
my OB-GYN due to recurrent issues
 due to the stress the craniotomy put on my body.


The neuro-oncologists say, “Yeahh..that's not our strong point.”
You should touch base with them.
Which I had and was awaiting a call back.
(Which came the moment I walked in the door from Duke.)

I was hoping maybe someone may have mentioned it before.
Guess not.
We like to be different.

So, when Dr. Desjardin came in she pulled up my MRI
for us to see how it looks.
Back in April she said it was such a clean resection
and
she was impressed.
She told us the hole would get smaller
and
she would be watching if the tentacles come back.

Well, this time (they always slowly feed you with
a tad more information each appointment)
**This is how Dr. Grossi did it too. **
And we are perfectly OK with that.
Things goes on a need to know basis.

This time she said, (something we have heard from Dr. G before)
you know we can not remove 100% of the tumor due to the
tentacles creeping into normal brain tissue.
So the tentacles are still there.
You see this fuzzy line right here?
These are the tentacles.

Last time we got pointed out a nice clean line
and the difference of the clean line versus
pre-op MRI of the tumor and the big tentacles.

So, if anyone has tried to read up.
Astrocytoma's are infiltrative tumors.
Due to the tentacles constantly creeping into
every nook and cranny possible.
You know, kind of spider web like.

She did say, the fuzzy portion is exactly
like they were on my MRI from a couple days post
craniotomy.
And again she mentioned Dr. Grossi's work
but this time saying,
“This is the BEST Grade 2 resection I have EVER SEEN!”

Again, mad props to the amazing Dr. Grossi!
Seriously, people.
A-MA-ZING!!

So, in July I will be back and
how the schedule worked out
this MRI will be on site at the Cancer Center
then I head up 2 floors to the Brain Tumor Clinic.

The nurse that followed in with Dr. Desjardin
walked right in and said, 'You LOOK WONDERFUL!”
She sounded surprised.

I don't know how I am supposed to look
and
people at all my Specialist Offices
keep saying it with shock in their voice.
I guess I will take it as a good thing.

I am not anywhere near where I was before heck even
my biopsy.
But, I am working on it.

I am determined and will kick butt.

The things that are hard are, well,
I was given a “Survivor” shirt.
I think, compared to what others have gone through
I have done nothing compared to them.

I don't feel I deserve it.
But then, I realized that's not true.
It's hard to be.

It will come back.
They just don't know when it will
and depending on how it comes back will
possibly be a third brain surgery
or
only chemo.

But, there will be chemo in my life.
They just don't know when.
So, at a Grade 2 it is benign
but I go to the Cancer Center.
Even if my Grade 2 tentacles grow
I will go on chemo.

If new spot shows up, it will most likely
be a 3 or 4 because they have a high
tendency to come back more aggressive
at 3 and 4's it's is brain cancer.
If in an operable place it will be re-sectioned
and
I get chemo.

It could happen any day now
or in
20 years.

But as Dr. Desjardin said,
“It won't get there because I will be watching it so close.”
So yes, we will catch it early again
and
I will continue to kick it's ass and take names.

It was just finally hearing that again
and
finally realizing it.

I knew it was something that will be done
for the rest of my life.
Which I will tell you I will die somewhere between 85-95 years old.
So, it's going to be a long time.

It just finally clicked to the understanding
of claiming
“I am a Survivor.”

Because I will.
So, since our fabulous experience with Angels Among Us
I have now worn my Survivor shirt
twice.
I may as well own it.
I wore it yesterday all day for all to see.
Last week I wore it to my 3rd time I went to Boot Camp since
my craniotomy.

Oh yes and Monday I went to my 4th class since surgery!
Working the way up
but probably won't get to class tonight
because I don't think I physically can do it
but we will see how the rest of today goes.

So I have a photo of me at 2 months to the date
post-op and post Boot Camp class #3.
Yeah...I was nasty sweaty. :)
My as well own it. (The Survivor title.)
It is what it is. 
Why fight who you are. 



And a photo from this morning in carpool
of our sweet Aidan.
Tomorrow is his last day of preschool.
Today as the last day I will drop him off
tomorrow his class meets a park for a
party.
Where did the last 5 years go?!
We stay on our toes!

Let the chaos continue!

Thank you Lord for keeping us challenged
and
getting us to understand how we listen to your Plan for us.
Thank you, thank you.









Saturday, May 18, 2013

Something my best friend showed me.

My best friend sent me an article mentioning this
wonderful super positive
 Mother. 
It is nice to read and hear about her and
her Husband through it all. 

I think it is only right to share her personal blog. 

How incredibly AMAZING!

Smoke alarm on the fritz


So sorry I have been slow to blog.
You know, why keep things calm?!

Whether it's a choice or how things tend to go.
Mostlly, it is how things tend to go
so
if we do get a choice
we don't tend stray from the not crazy
because we would be choosing
the non-norm.

Anyways, yeah, so I have surpassed
2 months to the date since
surgery
and
Wednesday marked 9 weeks.

This week I have hit a lull.
First time in a while I have over done it.
I did not mean to.
REMEMBER, (for the super critical non-constructive ones)
my first and foremost choice is to take care of the
Boys.
That includes, diaper changes, taking them to school, snacks, meals,
groceries, laundry etc.
Once I get the hang of that I will do more.
That said, I have taken a dip back into my
Super Awesome Boot Camp class.

Why?! People may ask,
well, that is how I handle my stress.
Is it easy to handle stressed out kiddos,
Autism tantrums?!
(Have you ever experienced them?!)
It is hard and after hours upon hours of it
you know you sometimes tend to lose your cool
especially if you don't have an outlet.

My outlet is exercise.

The few times I can actually give my brain a break.
I feel revived and ready to start again.

I as have mentioned I am no where near where I was before
with class
AND
that is OK.
I AM OK with that.
AND
THAT IS MOST IMPORTANT!

By going back to class I handle the Boys better,
I am better for Andrew
and
for myself.

Health wise you must find a good
stress outlet.

Bottling it up is not good for your mind or body.
It REALLY can affect all of your bodies systems.
Don't worry I studied for my bachelor's degree on that.
It's not a fake thing, it's true science.
And again why the neuro-oncologists
are pushing for it.

OK, I need to step off my soap box.

Andrew and I had an unplanned trip to Texas.
It was pretty stinking nice.
We really enjoyed it and loved the area.
It was the first time either one of us had been there.
It deserves it's own post
and
I will do that soon.
(Probably after the long deserved Angels Among Us post.)

That said, I missed the Boys.
A break is nice and the Boys
can be a handful
but
we both still want to be with them.

So, you know after all the stress on them with
my surgery and recovery
let's add a trip for us to it!

Talk about some super separation anxiety of these
Sweet Stressed Little Men.

D has hit his limit and was in our bed with us.
(He usually wants ONLY his bed.)
So that was how Sunday night went.
I slept pretty OK
and
Andrew was kicked all night.
Monday, the Boys did well enough.
The older two went to school
and
I chilled out with D.
I also caught up all of our laundry.
Then went to Boot Camp.
I came home pumped with energy.
And had two great friends come over for a surprise visit!

THEN came our typical crazy.
Super early Tuesday morning, I was already in the shower.
The Boys were all woken by one of our smoke alarms.
Yup.
So, when one goes off it makes all the others go off.
We have six in our house.
Well, nothing was smokey it was just one on the fritz.
Don't worry they all got brand new batteries 2 months ago.
Yeah...so it is hard to pin point the fritz one
when they all are going off anywhere from 5 seconds to a minute
you are running like fools comforting the Boys
and trying to see
which one is the culprit.

We read up on it could be insects or dust
on a sensor.
So, first step take them all down and blow them out.
(Thanks to our air compressor.)
Guess what...
it did not work!
And one squealed like a fool
when being cleaned out.
So they would wait 5-20 minutes
in between going off.
Logey also has his Speech Pathologist come in
on Tuesday mornings.
Yes...real helpful for a therapy session!
So by that point it was almost 3 hours of them
randomly going off
and I was
right by the dumb one.
FINALLY!
SO Andrew got it down
and we were good.
Andrew went to work,
I took the Biggun' to school
then
Bitty, D and Me hit up
the home improvement store.
We bought 6 new ones.
You know, if one is on the fritz and you fix it
that pretty much
asks the rest to follow suit.
So we took the initiative to start fresh.
Tuesday's are long days.
Logan has Occupational Therapy in the afternoon.
Lately, their office has been bonkers when we get there.
So, have a stressed out (since we were out of town),
early risen (due to the smoke alarm),
sound sensitive (due to constant alarm sounding) Kid
not to mention his Special Needs
and
put him in the overstimulating (paint and lights)
waiting room,
with it's recent increase in crowds.

He was kind OK at first, a little over stimulated and trying to work with it
then saw his Therapist come out
with her current patient then
step back into the office.
He flipped out. She came quickly back out.
I gave her the short update
and
since she knows him so well
knows the crowd was not helping.
She took him back quick
holding his small flailing self
who ended up kicking
a nearby Boy in the head.
(He was not aiming or aware of the other people, that was just
how stinking crowded it was in there.)
Barely room to move.
I apologized profusely to his Father.
Who thankfully was super nice.

Yes, so D get's no naps on those days
and
is tired.
Etc.
Yes, those are long days and early nights.

Wednesday was a day of needing groceries but
I have signed up to meet
one of my Friends and her Baby Boy
for free play at one of our
local recreation centers.
D LOVED it!!
But that was a long day too.
I had an afternoon appointment also (=no rest) then
you know the Boys wake from nap
and the day continues.

Thursday, we needed all groceries.
I woke early to make the bread we were out of
and I was too tired to make it
the night before.

I took Aidan to school
then
took the Little's on our grocery runs.
I use coupons some but mostly know
the stores have more consistent prices
and the least price
of some of our big ticket items.
So unfortunately I needed to hit 3 stores.

Well, when pushing carts full of groceries with
60 pounds of kids in it.

Yeah..first time I have tried that since surgery.
I usually only go with just D
but it did not work with our plans this week.
So it had to be 2 kids
or
I get up super early to go kid free
or
go super late to be kid free.
Which means less sleep.
So obviously I chose more sleep but
more kid weight.

It was too much for me.
Now I know where I am
and
will more easily remember it
due to my exhaustion level.

Only thing is, Summer is coming up
and
will be taking all 3 Boys!

I make Aidan walk but
everyone once in a while (pre-surgery)
I would let all 3 be in the cart
which takes it to 100+ pounds of Kids.

Yes, that is not gonna happen anytime soon.

Needless to say, I got some help unloading the groceries
and picking Aidan up from school.
I rested but it wasn't enough.
So I went to bed early,
slept all night.
Slept in, and was still exhausted.

I can't even remember right now(today is Saturday)
what I did yesterday morning.
But by lunch time with the Boys I was done.
I called Andrew home.
:(
He took over lunch and got them to nap.
All 3 napped.
I napped 3 hours.
I woke to 3 sleeping Boys at 4:40p. YIKES!
I was still tired but know if I nap too much
I can't sleep at night.

Needless to say, I made dinner.
And could barely get myself up our steep stairs.
Andrew put the Boys to bed and I literally crawled from
our hallway into our bedroom
and
into our bed.

I was asleep before the Kids.
I slept until this morning.

Aidan had a school mate's birthday party to go to.
It was a lot
so here I am this afternoon resting.
I could seriously nap but would rather
just go to bed early.
Or perhaps take a short snooze.

But yes, I knew the party would be too much.
But he is almost done with the school year
and
will miss his school friends as they all
go to a different school next year.

So we all went since if I did not go that
means taking care of 2 littles
and
it is too much for one of us to take all 3 Boys by
ourselves to a museum.
You can lose Logan in a heart beat
and to
find him you have to relinquish your
attention 100% from the other 2.
Just not safe at all.
So, 2 adults are needed to take all Boys
out to a place like that.
Perhaps, after more years it will be
feasible but not
at this moment.
We'll get there though!!

Angels Among Us Post due soon
and
A Texas post which includes some awesome air plane photos.
Yes, an awesome private air show.
SO neat!
AND
some GREAT Family time too!

Tuesday, May 7, 2013

Almost 8 week post-op and Boot Camp Baby!!


Oh 8 weeks.
Yes, 8 weeks ago tomorrow.

So, last night I went back to Boot Camp.

Like normal we must always
have a level of chaos
maintained in our life.
After 8 weeks of Bitty in meltdown
mode
and
the other 2 being definitely out of sorts
and then
add some non-kid crazy
wildness.

I need to burn off excess energy!
I have to make my brain stop moving
8,000 mph.
I need my stress relief.

By mentioning about Boot Camp
some people came out of the cracks
trying to say I am over doing it.

Don't worry people!
I listen to the professionals!
(From my Neurosurgeon, Neuro-oncologist PA, Neuro-oncologist MD etc..)
I take it to heart
and
I listen to my body too.

How else do you think we found
the tumor?!
If you do any reading on early symptoms,
people tend to ignore them
and
only listen once it is aggressive.

Now that said, I never would have
thought that was what
was going on in my body.
But I knew in my gut something
just did not feel right.

I am not a big go to the doctor
for every silly thing.
(Don't get me started on that rant.)
I go when something just
out right doesn't seem right.
It's a gut feeling.
A feeling of something hanging
over your head or weighing
on your shoulders.
*If it's not obvious symptoms that you are super ill
and
need something from the doctors to over come it.

So yes, I listen to my body.

I keep getting warned about
not over doing it.

So far, not over doing it.
You do need to challenge yourself
but within reason of course.
So, that is what I do.

Here I was ready to go
with our Boys swarming around me
of course.
So I watch the Kids and Andrew wanted a retake

The Biggun' and D insisted on holding my hands. 



How else am I to know where I am?
You have to try and see
then you will know
if you need to step back
or
amp it up.

So, I went to Boot Camp last night.
AWESOME!

As I was told by the awesome Doctors,
I knew I could not do
what I used to do.

I know I have to ease back into it.

Luckily, my Instructors are great at
modifications
and
I do have a degree in exercise science.
So I also know modifications
to exercises too.

I did not bring my bag with my weights in it.
I used my Mom's small weights some
and
did most with no weights.

I also know I cannot do cardio for another month
So, again modifications in play right there!
And
I am perfectly OK with that.

Don't get me wrong, I wanted to run
but I know what it would feel
like if I did.

I know what the aftermath would be
and
it would be a terrible feeling.

That's enough for me to know
and
keeps me far from the temptation.

Class was great.
My Instructors are awesome
and
the nice boost you get after
a good exercise was AMAZING!

It was awesome!!!

This also made me sleep better.
Finally a more peaceful night of sleep
minus the fussing D through the night.

Which is just what he has been doing since
we have had extra people around
the house for weeks on end.

Once he gets the feel that it's just us
he will hopefully sleep a little easier.

That said, I am tired this morning from his disruptions
but
my giant bags that have been under my eyes
for 8 weeks
are gone.
Yeah.

Finally, some real rest
so again, as I have said before
I can only sit still for so long!
Then I get antsy and have to burn off
the excess energy.

Heck even this morning
Bitty's Speech Pathologist that
comes to our house
asked me how I was feeling.
She then said that I have so much more
energy than I have since the surgery.

I give that credit to going back to class.

It was AWESOME!!


Saturday, May 4, 2013

CA-RA-ZY..curve balls, c*ncer..We will win!

OH MY LORD!
We just live with CA-RA-ZY!!
Good and not so good.

Today was a good day.
Our oldest niece
had her First Communion.
It was nice.

It was the first time Logan
and
Daniel were brought to Church
in a few years.
Between 12 hour a day
colic and vomit baby
and
tantrum filled beyond belief
almost 2 year old
with
developmental delay
and
diagnosis.

Yes. They did OK.
The people behind us were nice.
They said they understood.
Logey and D
both insisted
Mama.
I was holding them most of the time
by the end
especially after kneeling
my legs were shaking.
So at this point I am tired
but
that is OK.
I did not get to listen as well
as I want
but
it comes with the Momma territory.

One Lady behind us told me at some point,
“You are a Super Momma.”
I just smiled.
OK?!
Then I think..does she know my Sister..
does she know me?!
What does she know?


Oh well.
She was nice.
I saw a Boot Camp classmate
who has a daughter there too.

I saw one of my OB's there.
I saw an old Boss
and
his Family.
One that we have known since I can
remember.
She commented on how small I am.
My Mom popped in with, "She had a recent surgery."
She asked what.

Yeah...so I had to answer.
Yup.
So...not what people expect.
You think?

After it all,we headed to my Sister's.
It was nice.
With a Rogers' curve ball.

With that...what do I do?!
I enjoyed some Chardonnay.

We had cucumbers, carrots and celery to enjoy.
Then came the meal.
Beef tenderloin.

Mmmmmmmmm..
Yes...so
2 beef tenderloin sandwiches, mac n cheese,
salad, then another chunk of beef tenderloin,
then a small bit of tenderloin,
then a piece of super yummy
chocolate cake,
then the rest of Aidan's cake
then I got another slice
and
ate one bite.
Then I felt full.
Yeah..
then I kept munching on veggies
yeah.
I am a weirdo.

And of course water!!

Yeah...I am planning on Boot Camp
class on Monday.
I know I can't do much
but
this is how I handle
curve balls.

It's how I get out the frustration,
or anxiousness
or
whatever you want to call it.

This comes with the cruddy situations
and
the good.

So..it's my coping mechanism.
Crazy Lady I know.

So..
What
A
Day!

OH yes!!!

AND MY SISTER
told me an idea she thought I might like
and
we want to try for fund raising
for the Brain Tumor Center.

A beer run!!

Run a lap, drink a beer, run a lap, drink a beer...

You get the hint!
I think it's AWESOME!!!
TOTALLY!!

I wonder who all would come..
Let me know!
We shall see how we work it all up!
Seriously!

She was in the newspaper this week.
She and my awesome Brother-in-law..
 he's an in-law..
but peeps...
He's been around a long long time!
He's my brother!!
I mean..we're talking 22 years...
yeah...since he first showed up
they have known each other longer than that though.

She was in the paper talking with
a 10 year old who has lymphoma
and
working with fund raising.


We will battle you you nasty
C word.
The word I try to avoid around our Boys.
I have some not so nice phrases
that cover my feelings on that.

WE WILL WIN!
Knowledge is power.
What better way to kick it back!

I promise “C” I will be wear at least
a lead combat boot
and
some more
tricks up the sleeve.

Like I said,
we get our i's dotted
our t's crossed
and
our wants are raising
money on research.

KISS MY BUTT CANCER!
WE WILL KICK YOU BACK
AND
THEN SOME!
WE WILL WIN!!
YOU SUCK!!


OK..I will stop there.
Here are our Boys and us this morning before we left for A's First Communion.



Take 1

Take 2